Support Group for Moms, Dads, Grandparents and other caregivers of Babies with Infant Reflux and GERD  - InfantRefluxDisease.com

Reply
 
Thread Tools Display Modes
Old 11-03-2009, 10:01 PM   #31
Mommy2Sammy
I love my boy!!
 
Join Date: Oct 2009
Location: Littleton, CO
Posts: 13
Rep Power: 0 Mommy2Sammy is an unknown quantity at this point
Re: Good pic of Sandifers
How do I find the user group for Sandifer's? My son has it and I am very interested in talking to mommies with GERDlings who have Sandifer's!!!

Thanks,

Melissa
__________________
Melissa - Mommy to Samuel Ethan
Born 05/15/2009 @ 6:55pm - 38 Weeks
8 lbs 4 oz 20.5 Inches
GERD DX'd @ 2 months
UGI showed Significant Reflux
15mg Prevacid 1x a Day - Mylanta 1mL 4x a Day
Mild Food Aversion - Good Weight Gain
Uses AR Pillow
Sandifer Syndrome DX'd 8/20/2009 @ Children's Hospital
Mommy2Sammy is offline   Reply With Quote
Old 11-03-2009, 11:47 PM   #32
Emma`s mommy
IRD Addict
 
Emma`s mommy's Avatar
 
Join Date: Sep 2008
Location: CALIFORNIA
Posts: 710
Rep Power: 25 Emma`s mommy is a jewel in the roughEmma`s mommy is a jewel in the roughEmma`s mommy is a jewel in the roughEmma`s mommy is a jewel in the rough
Re: Good pic of Sandifers
By the way, my son`s torticollis was caused @ birth, where they tore up his sternocleidomastoid muscle....caused severe Plagiocephaly...2 Doc bands later + after 2 years of PT, OT and speech, he is fine=all these were caused by torticoliis....keep in mind, MANY doctors down play torticollis BUT it can cause major delays...........I hope that your son will get help with S. syndrome treatment
__________________
Eva, happily married to Richard ( Irish lads are soo handsome!
Mommy to -Jack, my red hair prince , born 2/22/2006- reflux at birth, tongue-tie ,resolved via surgery May 08; Metatarsus Adductus -3rd degree ( At birth), Congenital muscular torticollis , resolved via surgery June 2007.OT/PT/Speech for the first 2 yr.
Dairy / soy allergy.
- Emma, my reddish blondish beauty so far, born June 2nd, 08,via C-section, born tongue-tie, reflux noticed at birth, diagnosed at 3 months, on Alimentum + Oatmeal since 3 m old
Dairy / soy allergy, 14.5 mg Prevacid since 3 months old, dairy trial @ 11 m failed, GI / skin reaction to every food introduced.
-UGI done , July 09-no atypical findings
Emma`s mommy is offline   Reply With Quote
Old 11-04-2009, 02:55 PM   #33
Twins plus Two
Twins are double the fun
 
Twins plus Two's Avatar
 
Join Date: Jul 2007
Location: UK
Posts: 2,425
Rep Power: 71 Twins plus Two has a brilliant futureTwins plus Two has a brilliant futureTwins plus Two has a brilliant futureTwins plus Two has a brilliant futureTwins plus Two has a brilliant futureTwins plus Two has a brilliant futureTwins plus Two has a brilliant futureTwins plus Two has a brilliant futureTwins plus Two has a brilliant futureTwins plus Two has a brilliant futureTwins plus Two has a brilliant future
Awards Showcase
Halloween Competition: Halloween Competition Winner - Issue reason: Congratulations Kitty 2009 Halloween Competition Winner 2,000th Post:  - Issue reason: Sorry for the belated award!!! Finally a 30 pound member!: Congratulations! This one is one to celebrate! - Issue reason: YEAH!!!  Hooray for Archie!!! 1st IRDiversary:  - Issue reason: Belated 1st IRDiversary!  Thank you for all your support and friendship. :) 
Total Awards: 9
Re: Good pic of Sandifers
Harry and Archie were always like that and Harry DID get Torticolis (sp) from the constant neck arching. Poor little mites Archie had more pronounced Sandifer's but never got the torticollis.

Kate x
__________________
Kate, Mummy to four with reflux.
Twins plus Two is offline   Reply With Quote
Old 11-04-2009, 05:55 PM   #34
Mommy2Sammy
I love my boy!!
 
Join Date: Oct 2009
Location: Littleton, CO
Posts: 13
Rep Power: 0 Mommy2Sammy is an unknown quantity at this point
Re: Good pic of Sandifers
Sam never got torticollis but he has mild positional placiocephaly. Sometimes during his SS episodes he holds his breath and his face always gets red....his body gets stiff and his arms go out from his sides with fists clenched. All this is usually followed by a very loud scream and when I pick him up he stops immediately. They look exactly like the seziures called Infantile Spasms so he had many neurological tests at Children's Hospital until they figured out what the issue really was.

All his SS episodes can be prevented by never laying him flat on his back except for diaper/clothing changes.
__________________
Melissa - Mommy to Samuel Ethan
Born 05/15/2009 @ 6:55pm - 38 Weeks
8 lbs 4 oz 20.5 Inches
GERD DX'd @ 2 months
UGI showed Significant Reflux
15mg Prevacid 1x a Day - Mylanta 1mL 4x a Day
Mild Food Aversion - Good Weight Gain
Uses AR Pillow
Sandifer Syndrome DX'd 8/20/2009 @ Children's Hospital
Mommy2Sammy is offline   Reply With Quote
Reply


Thread Tools
Display Modes

Posting Rules
You may not post new threads
You may not post replies
You may not post attachments
You may not edit your posts

vB code is On
Smilies are On
[IMG] code is On
HTML code is Off

Similar Threads
Thread Thread Starter Forum Replies Last Post
A good update. melba19 Motility 6 04-24-2006 06:47 PM
Why do we have good nap days and bad nap days??? Emily M Sleeping Problems 5 04-18-2006 10:18 PM
Good and bad days of feeding Maya Feeding Issues 7 01-01-2006 08:04 PM


All times are GMT -5. The time now is 12:55 AM.


Design by Vjacheslav Trushkin, color scheme by ColorizeIt!.
Powered by vBulletin Version 3.6.1
Copyright ©2000 - 2009, Jelsoft Enterprises Ltd.