Support Group for Moms, Dads, Grandparents and other caregivers of Babies with Infant Reflux and GERD  - InfantRefluxDisease.com

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Old 09-08-2009, 03:42 AM   #11
Sams Mum
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Re: Check-in for the older kids!
Your name: Mary

Your older kiddo(s) and ages: Sam -- 2 years 10 months

When was reflux diagnosed? informally at 4 months, but only properly medicated by 9 months

How are their symptoms different now from when they were younger? Sam went through a dreadful vomiting year or so from 10 months on; now his reflux is mostly silent - burps, gulps, etc. He used to cry a LOT as a poor unmedicated reflux baby (he would have cried non-stop if left to his own devices) but now he's much better. His sleep, especially day naps, were also affected when he was younger, but he's sleeping fine now. His main consistent symptom is food aversion, which has slightly improved but not gone away.

How do you think reflux has MOST affected your child(ren)? Definitely the food aversion. From birth he didn't want to feed, and he would still rather not eat at all. VERY dysfunctional relationship with food, especially food with any texture whatsoever... BUT his drinking aversion has improved a bit!

Do you foresee your child "outgrowing" reflux? I'm still hopeful. His symptoms have become less severe, and he's slooowly overcoming some of his food issues, so I want to hope that he might.

What meds is your kiddo currently taking? If no meds, how are you managing their reflux (diet, positioning, etc)? 20mg Nexium twice daily
__________________
Me (Mary): Legal academic
Son Sam (born 9 November 2006, two months early): Full-time job being adorable!

I LOVE MY BOY!
pH study in Aug 2007 showed reflux
Barium swallow in Jan 2008 came back normal
Gastroscopy in Jan 2008 showed oesophagitis
Meds change from 30mg Losec to 40mg Nexium in Jan 2008
pH study in June 2008 showed reflux, but that the meds were keeping the acid under control
(Sam's drinking formula much better. He is now putting tiny bits of some table food in his mouth and swallowing them!!! The bulk of his nutrition still comes from foods of pureé consistency, though.)

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Old 09-08-2009, 03:48 AM   #12
JoMarch
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Total Awards: 4
Re: Check-in for the older kids!
Mary, off topic here, but from where in SA are you? I just met a friend here in SoCal who was born in Johannesburg..she is very sweet...
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EVA

married to Richard

Mommy to -Jack, my red hair prince , born 2/22/2006- reflux at birth- resolved @ 12 months, tongue-tie ,resolved via surgery May 08; Metatarsus Adductus -3rd degree ( At birth), Congenital muscular torticollis , resolved via surgery June 2007.OT/PT/Speech for the first 2 yr.
Dairy / soy allergy.Never on meds. Able to have 1% dairy.

-Emma, my reddish blondish beauty so far, born June 2nd, 08,via C-section, born tongue-tie, reflux noticed at birth, diagnosed at 3 months, on Alimentum + Oatmeal since 3 m old
Dairy / soy allergy, 14.5 mg Prevacid since 3 months old, dairy trial @ 11 m failed, GI / skin reaction to every food introduced. Staying away from dairy.
-UGI done , July 09-no atypical findings
-No Prevacid & Alimentum since September 2009
-Sensitive to corn, potatoes, tomatoes, crucifious vegetables, soy, dairy,peas and hemp. Emma can tolerate goats milk.

"Be who you are and say what you feel, because those who mind don't matter, and those who matter don't mind."


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Old 09-08-2009, 03:52 AM   #13
Sams Mum
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Potty Trained: For those who are potty trained - Issue reason: Sam's a big boy now, hoooray! 1,000th Post:  - Issue reason: Congrats on passing 1000, Mary! 500th Post:  - Issue reason: Congratulations on 500 posts!!! WTG!! 
Total Awards: 3
Re: Check-in for the older kids!
Hi Eva
I'm from Cape Town (or at least about 50km away, Stellenbosch and Paarl, where all the SA wine comes from), so pretty far from JHB. A lovely part of the world to live in - vineyards, mountains and beaches all in close proximity!
__________________
Me (Mary): Legal academic
Son Sam (born 9 November 2006, two months early): Full-time job being adorable!

I LOVE MY BOY!
pH study in Aug 2007 showed reflux
Barium swallow in Jan 2008 came back normal
Gastroscopy in Jan 2008 showed oesophagitis
Meds change from 30mg Losec to 40mg Nexium in Jan 2008
pH study in June 2008 showed reflux, but that the meds were keeping the acid under control
(Sam's drinking formula much better. He is now putting tiny bits of some table food in his mouth and swallowing them!!! The bulk of his nutrition still comes from foods of pureé consistency, though.)

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Old 09-08-2009, 03:59 AM   #14
JoMarch
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Rep Power: 31 JoMarch is a name known to allJoMarch is a name known to allJoMarch is a name known to allJoMarch is a name known to allJoMarch is a name known to allJoMarch is a name known to all
Awards Showcase
Bottle Graduate: For those who have managed to remove the bottle - Issue reason: Bye bye bottle!  :) 1st IRDiversary:  - Issue reason: Happy IRD-iversary! 500th Post:  - Issue reason: Wooohooooo!  500 posts!  :) GERD Graduate: The recipient of this highly sought after award  has successfully survived their child's reflux and GERD issues. They are the lucky ones whose children have outgrown it. - Issue reason: Congrats on being med FREE!!! 
Total Awards: 4
Re: Check-in for the older kids!
Hi, i have tried your yummy tea so far=delicious maybe i will try the wine next....
__________________
EVA

married to Richard

Mommy to -Jack, my red hair prince , born 2/22/2006- reflux at birth- resolved @ 12 months, tongue-tie ,resolved via surgery May 08; Metatarsus Adductus -3rd degree ( At birth), Congenital muscular torticollis , resolved via surgery June 2007.OT/PT/Speech for the first 2 yr.
Dairy / soy allergy.Never on meds. Able to have 1% dairy.

-Emma, my reddish blondish beauty so far, born June 2nd, 08,via C-section, born tongue-tie, reflux noticed at birth, diagnosed at 3 months, on Alimentum + Oatmeal since 3 m old
Dairy / soy allergy, 14.5 mg Prevacid since 3 months old, dairy trial @ 11 m failed, GI / skin reaction to every food introduced. Staying away from dairy.
-UGI done , July 09-no atypical findings
-No Prevacid & Alimentum since September 2009
-Sensitive to corn, potatoes, tomatoes, crucifious vegetables, soy, dairy,peas and hemp. Emma can tolerate goats milk.

"Be who you are and say what you feel, because those who mind don't matter, and those who matter don't mind."


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Old 09-08-2009, 04:44 AM   #15
scarlet
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Re: Check-in for the older kids!
Originally Posted by Lori View Post
LOL, Rachel! I think we just posted the exact same answer on most of the questions! These kids, what are we going to do with them????
LOL Lori, I was amazed that most of the answers of older ones are similar! Weird huh? Just shows you that eventually you sleep and the child eventually eats (with any luck!).
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Wife to Daniel and mum of THREE beautiful boys.
Cooper 7 yrs, my sensitive, shy and sweet boy.
Parker is now FIVE! My GERDling and sweetheart, non stop talker, now started kindy!
Beckett my little baby! Born 5th October 2009.






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Old 09-08-2009, 09:34 AM   #16
Katey
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Re: Check-in for the older kids!
Your name: Katey

Your older kiddo(s) and ages: Sebastian

When was reflux diagnosed? One month

How are their symptoms different now from when they were younger? She is well controlled on meds. I only see symptoms (hicupps, wet burps, poor sleeping, grouchy behavior) when he is off his meds

How do you think reflux has MOST affected your child(ren)? It is hard to say since he has always had it, I don't know how he would be without it. His reflux and food allergies are a big part of his life and something that he has to think about more then a 3 1/2 year old should

Do you foresee your child "outgrowing" reflux? I think he will always have it to some degree. I hope we will be able to get to a point where he does not need meds every day, but I don't know.

What meds is your kiddo currently taking? If no meds, how are you managing their reflux (diet, positioning, etc)? 3 1/2 mil of Axid tiwce a day.
__________________
Mom to:
Sebastian Joseph 12/7/2005*Silent Reflux/MSPI
Multiple food allergies/intolerances
Positive skin test for: Chocolate, Peanuts and Oats
Reacts to, but tested negative for: Milk and Soy
(he is fianlly starting to tolerate more foods, but we are taking it slowly!)
Environmental allergys to: Grass, Tree, Weed , & Molds
Low IgG and IgA
Prevacid 30mg a day Benefiber 3-4 teaspoons daily(previously been on Zantac, Reglan, Axid and Mirlax)


Emma Catharine 3/24/07*
Silent Reflux outgrown at 15 months!!
MSPI, Outgrown at 1 year!!
Allergic to dogs, dust and mold
low IgA and IgG


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Old 09-08-2009, 02:44 PM   #17
Lena
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Re: Check-in for the older kids!
Your name: Lena

Your older kiddo(s) and ages: Maggie 6

When was reflux diagnosed? Misdiagnosed around 4 weeks as reflux to turn around and actually have reflux around 10 weeks

How are their symptoms different now from when they were younger? She doesn't puke much anymore. Birth to 1 yr she ate but not much then stopped altogether when I stopped formula. Now she's back to eating again.

How do you think reflux has MOST affected your child(ren)? She's just now realizing she's different. That her friends don't take medicine and that if the cat pukes she doesn't need prevacid too. She gets frustrated that she can't have juice etc like everyone else. Other than that, it's all she knows.

Do you foresee your child "outgrowing" reflux? HAHAHA that's funny

What meds is your kiddo currently taking? If no meds, how are you managing their reflux (diet, positioning, etc)? 45mg Prevacid
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K ~8-6-00~
allergy boy!

Mag ~8-11-03~
36.7# & 46"
Pyloric Stenosis ~~ GERD
Chronic Duodenitis ~~ FORMER Failure to thrive
FORMER Non-eater ~~ Prevacid 45mg/day

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